Title : Genetic screening is not health; it is the removal of groups of people
link : Genetic screening is not health; it is the removal of groups of people
Genetic screening is not health; it is the removal of groups of people
unwanted children
When the war was over, it became clear that more than a quarter of a million people with disabilities had vanished: 25% were children . People could not understand. Why no one tried to stop this holocaust?
Today we rely on prenatal genetic screening to make our selections in private. However, the effect on society is the same.
Exposure and inclusion
In pre-Hitler Germany, integrated community school children with a variety of learning disabilities and developmental much before it became a standard policy in North America. The first school for deaf children was established in Leipzig in 1778. The first school for blind children was established near Berlin in 1806. The pioneers in education and human rights he believes that his problems were caused by social deprivation, not by their genetics. His goal was to help children with disabilities to lead fulfilling lives.
People with Down syndrome and other disabilities are no longer in institutions because we know family life is much higher. Pioneers taught us that problems that once were attributed to genetics, were caused mainly by low expectations. In recent years we have seen people with Down syndrome being chosen as Councillor , walk the fashion show possess restaurant give Zumba instruction , perform a tV show compete in "> professional sport get college diploma and a college degree .
These brave men and women became what they are today not because of Down syndrome and not despite it. They were able to succeed in life because they are included, encouraged and loved. Because their parents, friends and teachers saw their potential and believe in their ability. Today, most people with Down syndrome live a healthy and rewarding life.
The illusion of a perfect world
In the Nazi era there was a climate of social chaos and economic depression. By focusing on certain groups of people, the Nazis were able to establish a regime of fear and control. The progressive German model of an inclusive, diverse society transformed into a "perfect" shell company. Now the child was thrown into the illusion of "perfection". Children with disabilities did not meet the biological criteria for perfection. Under the pretext of "choice" that were methodically removed from their homes and isolated communities and institutions. The voices of those who recognize what happened, were ignored.
I fear that the difficult steps that were made during the last 70 years towards a more inclusive egalitarian society are being destroyed. Driven by commercial and political priorities, marketing the illusion of perfect children and a perfect life has intensified again in recent years.
The Danish media reports that Denmark will be a perfect society without Down syndrome in 30 years. When Professor Galjaard , geneticist and former Bioethics Committee of UNESCO member asked. "Oh, yes, that was one of my motivations '' Do you think that Down syndrome should disappear from? society, "said
scientific excuse
the concept of bio-genetic Nazi social utility included: the ability to work. Ultimately, this led to the division of the population into two categories; those "who had genetic value" and "those who did not." They used the bio-genetic science to justify policies that accomodated the disappearance of those who believes "worthy of life."
The biogenetic theory developmental problems attributed solely on the genetic makeup of the children. Even the social problems were now becoming evident in the institutions- -underfunded, overcrowding were attributed to genetic defects '' rather than a welfare system failing.
A small close-knit group of university and dominated medical university and hospital departments professors, scientists. They wrote and reviewed journal articles each other. They highlighted children with cerebral palsy, Down syndrome, or blindness "mercy killing". In terms of absolute power, careerism, greed and arrogance that planned and administered the disappearance of unwanted people. Even babies with disabilities were routinely attacked. Despite the advice of older psychiatrists who warns that serious diagnoses made in childhood were questionable.
The excuse genetic screening today:
When was mapped the human genome, a small select group of international scientists worked on developing (prenatal) DNA -screening technology. This research was sponsored by pharmaceutical companies, governments and health-insurance . This tight-knit group write articles and participate in studies (sets) often financed by drug companies . They are board members (semi) government agencies responsible for implementation and research regarding NIPT. They identified goal, made the agenda and identified barriers in public opinion .
In 2011, the NIPT ( Noninvasive prenatal testing) was introduced commercially. This DNA test can potentially analyze the entire genome of the fetus in early pregnancy from a single drop of blood taken from the mother. A select group of academics and policy determines the scope of the NIPT. Ultimately that divide the population into two categories :. "Those who are victims of screening and selection" and "those who are not"
Less than 5 years after the introduction of NIPT estimated one quarter of pregnancies worldwide it is proof of genetic variations such as Down syndrome. The Dutch Health Council recently recommends the application of the NIPT in is public health system. Other countries have announced similar measures.
A test can not predict the health, development or happiness based solely on the genes. There consensus this is the result of a complex interaction of predisposition and social and environmental factors. Detection of Down syndrome does not offer health-benefits ; increasing the number of selective terminations. This is not an objective of public health. To justify a policy that does not fit the objective of public health, disability, screening is marketed as a "reproductive choice 'escape' severe and prolonged suffering." Down syndrome and other various disabilities are chosen for "merci-abortion".
propaganda to shape public opinion
Consistent with all other forms of Nazi persecution, the campaign to eliminate people with disability was intense. Movies and posters with disabilities portrayed as helpless dependents, who could only survive at the expense of those without disabilities or healthy.
On the other hand, propaganda offered the solution by sending children and adults with disabilities to institutions and labor camps "voluntarily".
Social Marketing today:
Although research among a large population showing that most families with life Down rate better syndrome than the average population, the medical literature continues to describe the syndrome as "causing severe suffering risk '. Information to inform parents-to-be, cultivates . fear of being negative, exaggerated and address This example was found in a Dutch web: ". Most children with Down syndrome are withdrawn, shy, have difficulty making eye contact and interact with others, are prey quickly panic and have difficulty understanding conversation "
Professor Dick Oepkes, head of NIPT Dutch consortium, giving a scientific touch to your personal bias on both parents-to-be and down syndrome. in one study sponsored by Roche / Ariosa (developer NIPT Harmony used in the Dutch trial) which states that parents have a misunderstanding about the "severity of illness" based on "exceptional smiling cases of young children in the bands and TV shows, some of which are likely mosaics. "
Moreover women's magazines offer the solution to the voice of the new test as the Holy Grail to reproductive freedom of women . Many of these items seem to be paid advertising . on the other hand, the media focuses on individual choice only when it comes to selective abortion. However, business priorities and politicians have been declaring health-policy to accommodate the deliberate eradication of children with disabilities.
How to persuade the public of the need to eliminate people with genetic variations, holders newspapers scream: "a child with costs Down syndrome of 1 to 2 million euros" and "If you look out those who are sick in advance, we can accommodate and care for others"
[Individual choice
Nazi authorities saw mainstream schools, special classes, and treatment programs as a waste of money. They destroyed one of the best most complete education system in time. Because many schools, groups and people dependent on government funding, were not able to resist political change.
families with children with disabilities became increasingly deprived of family allowances and inclusive programs. Consequently, a growing number of families could no longer provide the necessary care for their children. As a result their children were committed in the belief that they would be better served in an institution than at home. Parents who refused were coerced and cajoled for the institutionalization of their children.
To justify "Mercy-executions", official reports exaggerated the degree of disability your child once the child is institutionalized:
"An eleven-year-old, whose parents were persuaded him to commit because her mother could no longer gather to bathe, was an avid reader and fluent. he was able to feed himself, but reports of his parents, described it as totally helpless and severely mentally retarded. "
Many, many parents questioned the reports they received. desperate parents were frustrated in their efforts to bring their children home. When they first arrived in the institution to bring them home, they were told that their son had been moved elsewhere. Most parents could not keep track of their children. They were never informed that her son was dying until death was imminent.
Today:
social, therapeutic and educational services for people with disabilities and their families declined in recent years in the Netherlands and several other countries. As a result an estimated 15,000 children with a variety of learning needs and development have been "liberated" of education and are known as' thuiszitters "(housewife children) . special education schools and day centers for children with special needs experienced several budget cuts. Finally some had to close their doors due to insufficient funds. , Size of classes on average are growing.
While the welfare system is underfunded and failing in the Netherlands, the government expanded its existing prenatal screening program with NIPT expensive. The question "Do you have the test done?" It is often heard in pregnant women. Moreover, the question that usually follows a diagnosis of disability is "do you want to abort her pregnancy." In Denmark prenatal testing for disabilities is automatically scheduled when women first arrive in the office your doctor to confirm your pregnancy. Although formally offered as an option, parents report that they are forced and cajoled for detection and abortion of their children.
"If results for Down syndrome at 38 weeks over the phone, and was offered a cease next day. "
" She repeated how our lives would be ruined by having a baby with down syndrome and that we should schedule an abortion. "
These parents-to-be questioned the negative information, the address given . Fortunately these parents were able to withstand the pressure and now report that they want to change or lose their children to the world. Downpride collects these and other personal testimonials on their Blackbook Downs .
Children know
Children who were still alive knew about the killings. A nurse told awareness of children in their neighborhood.
"It was a general rumor. The kids played a coffin game. We were amazed that the children understood."
Today:
Many people with Down syndrome and other disabilities know their cohort is intended for disposal. "> self-advocates speak of their good quality of life . They express their sadness that people like them are being eradicated by having Down syndrome. They hold banners during protests and are interviewed on the radio "> TV . According to human rights laws are equal human beings but their voices are ignored. Gradually their voices are silenced.
What happens next?
The facts can not be denied: 99% of people with Down syndrome say they are happy with their lives. So in making informed decisions, these positive experiences of real life should be reflected in the (small) number of terminations. However, the opposite is seen: selective termination rates are over 90%. This reflects fear, social and educational system failing, the address information, the suppression of women, prejudice, questionable science and commercial and political priorities in shaping health-policy . It's just a matter of time that people who are responsible, as well as people who are witness , this genocide sponsored by the State will be called to trial.
"old pediatrician Margaret tells me that years ago used to have a steady stream of patients with Down syndrome. Not anymore. Where they went, I wonder. In the west Los Angeles who are not born plus side, he says. "Washington Post, the debate on abortion, nobody wants to have, Patricia E. Bauer
Finally by separation of genetic science of humanity who victimize our children (born). Vulnerability it is not caused by disability ; It is caused by all acts that devalues human life. We are all vulnerable.
Many facts that appear in this article and learn more about the disappearance of unwanted children during the Nazi period can be found in http://www.holocaust-trc.org/wp -content / uploads / 2013/02 / unwanted.pdf
About the author:
Renate Lindeman is a disability activist, mother of two children with Down syndrome and representative for savings syndrome spokesman Downpride and co-initiator of stop discriminating down . She raises awareness of how genetic science is used to create fear and discrimination. She criticizes a health-policy in which trade policies and priorities of the form system. Policies that cater to the deliberate and systematic eradication of people with Down syndrome and other disabilities.
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